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Kevin's Advocacy Blog
A blog to explore prostate cancer public policy initiatives and strategies.
June 2009
Wednesday June 24, 2009
Summer is heating up!
Posted by: KevinatZERO at 9:25AM UEDT on June 24, 2009

July is approaching (and fast!) which means that the dog days are here - and I'm not talking about the weather.

Appropriations has a full slate of activity scheduled for now through the end of July.  The House is scheduled to take on LHHS and Defense the last half of the month before the August break.  Both bills are important as they provide almost $400 million in research funding for prostate cancer.  The Senate (which is staying in session an extra week to Aug. 10) should be able to finish their work on those bills as well.

Obviously, our attention is divided this summer as health care reform starts to build up steam.  There are many challenges ahead.  Our primary focus is to make sure that men are armed with information and can get the care they need.

Among the hot topics for debate will be universal health care (and all of the little tangents that go with it).  One thing that is of primary concern to us is the fact that irregardless of who is paying for what or how men are covered - it will be of little comfort under the current policies of our federal government as set by the US Preventative Services Task Force which does not recommend screening for prostate cancer.

Government plays a large role in the information that is distributed about many diseases from research (NIH) to prevention and control (CDC) to treatments and drugs (FDA).  Recommendations like those from the USPSTF are detrimental to outreach and awareness, and a disservice to all men - but especially those men who are at highest risk for prostate cancer.

If we cannot reach those men (the ones at highest risk for prostate cancer), then mortality rates will not continue on their current declining track.

These issues are not the only ones we are watching, but unless we start taking action and standing up for ourselves, we will be lost in the shuffle of health care reform.

Thursday June 4, 2009
2009 Summit Approaching
Posted by: KevinatZERO at 8:44AM UEDT on June 4, 2009

The 2009 Summit to End Prostate Cancer is scheduled for September 23-24 at The Liaison Capitol Hill Hotel in Washington, DC.  I know - it seems like it is far off in the future, but it's closer than you might think and as of now, there is still some space left in our room block.

Early registration for the Summit will end in two weeks (June 19) and registration all registrations must be in by August 21 for anyone seeking to take advantage of the room block at The Liaison Hotel.

Our topics this year will focus on building grassroot networks and we will discuss activating those networks to accomplish the goals that we set for policy, awareness and outreach.

The Summit is open to anyone interested in being an active advocate on behalf of prostate cancer patients, survivors and families.

Please visit the website below for more information and to download the registration form.  I hope you will join us in DC in September.

Summit to End Prostate Cancer Website

Tuesday June 2, 2009
Welcome Back Congress!
Posted by: KevinatZERO at 9:48AM UEDT on June 2, 2009
Congress is back after a one-week work period.

By my calculation, there are 24 "working" days before they adjourn for the August work period and the agenda is packed with health care reform, energy legislation, supplemental and regular spending legislation, and in case you haven't heard - a Supreme Court nomination.

Health care reform is said to be on track for floor action in July.  The outline that President Obama has introduced appears to garner more agreement than disagreement, but the while the number of categories of disagreement may be low, the CONTENT of that disagreement may be challenging for both sides.

For instance, we know that raising taxes will be contentious and there is very little bi-partisan support for government-run insurance.  There are at least 6 different GOP versions of health care reform from various caucuses between the House and the Senate.  While this does not mean that each one will get it time on the floor, it does mean that there are a number of issues and ideas that Members are prepared to introduce and discuss before the final bill is passed in the House or Senate - and then they will have to negotiate an agreement between the House and Senate.  Go ahead and strap in because it's going to get bumpy.

President Obama has asked that Judge Sonia Sotomayor be confirmed before the August break - which begins August 10.  Even a relatively smooth process will eat away at time on the Senate floor.

House and Senate leaders will also be working to finish a supplemental appropriations bill before turning to the FY2010 appropriations cycle.  There are rumors of a potential markup in the House later this week.

The energy package has nothing to do with prostate cancer or health care, but is an important bill that has been in the works for a couple of years.

Now - if they actually put in 5-day work weeks, there could be as many as 39 legislative days before the August Break - but realistically, most work is done between Tuesday and Thursday.  Who knows - maybe they'll work Friday's too.